“Her face grew so big she couldn’t eat—until surgeons stepped in.” Viktoriya’s rare illness changed everything, but life-saving surgery gave her a chance to smile again 💉📸 See her transformation photos in the article 👇
Viktoriya Komar, a participant on the Ukrainian version of Body Baring, has a story that moved the nation — and deserves to be told.
Born in 1994 in the Rivne region of Ukraine, Viktoriya appeared healthy at birth. But at age 7, she was diagnosed with scoliosis, a spinal deformity. Other than that, she was like any other child.
Then, at 13, her life changed dramatically. The sudden loss of a loved one caused extreme emotional stress, which triggered a hormonal imbalance. That’s when her condition began to worsen.
Doctors eventually linked her symptoms to a rare genetic disorder similar to Albright’s syndrome — a disease that affects about 8 in a million, mostly women. It causes bone deformities, pigmentation of the skin, and hormonal irregularities. Viktoriya’s body began to change in painful and visible ways.
Her jaw grew so large she could no longer eat solid food. She developed a severe spinal curvature and a hump on her back. Unfortunately, Albright’s syndrome can’t be cured — only managed through ongoing treatment.
Viktoriya lived with these changes for five years before seeking medical help. She underwent multiple surgeries, but her condition continued to progress.
Her life changed again when she appeared on I’m Ashamed of My Body. Specialists reduced her jaw size, replaced her teeth, and began a carefully tailored hormone therapy. Doctors also prescribed a rare, expensive medication to help slow her excessive growth hormone production.
Though the medication is costly, kind-hearted people across Ukraine — along with charitable organizations — have stepped in to help support her treatment.
Despite everything, Viktoriya remains positive. She works as a preschool teacher, surrounded by children who love and respect her. Her strength, resilience, and kindness continue to inspire everyone who hears her story.
We wish Viktoriya continued health, joy, and the support she deserves.
